Friday, April 11, 2014

More Doctor visits for Faith-Let it Goooooo!

Well we're still here! School is already out for us homeschoolers even though we will continue to school during the summer to brush up on other skills. I will have to post pics later. Faith has stepped on some very huge mile stones of progress. She speaks in phrases and belts out Frozen's 'Let it go' song every so often. She is quite funny! She is demanding at times, but is a great communicator, I don't think I have ever parented such a communicator. She closes her eyes to pray and says "amen!" Another example is: one night, she was repeatedly yelling out at 10 pm, "Mommy, mom, mommy, mom, ma"....and then I replied with a "go to sleep now Faith" And then she continued with a "mooooooooom". And I said "sleep". And then there was some silence again and then she said "Jeannie, Jeannie". Freddy and I laughed hysterically. She will not stop until she gets what she wants....hmmm sounds familiar. She even likes having bows in her hair. Ok, on another note regarding her physical progress. We have seen a physical therapist who gave us a load of stuff we need to look for and to set up a plan for her muscle strength. Then we saw a neurologist who looked at her and said she seemed fine but wants to have another MRI of her brain because of the flatness of her skull. Sheeshhhh...they also want her to see a crania-facial surgeon, but we're not operating for aesthetical reasons. We also saw Dr. Herzler a neuro-surgeon, who is very important to the equation because he was one of the doctors who originally gave the ok to adopt Faith! We finally go to meet him, and he shared that his younger sister was adopted from China! He also confirmed Faith's MRI results. He explained everything so clearly! Wow! He showed us her little spine and the little cysts filled with fluid and how it relates to the lesion on her lower back. Well her nerves and spine are in tact and her little lesion on her back which indicates Spina Bifida, are not connected at all-which is great. The spine was completely formed, but the skin on the outer side was not. There are little air bubbles filled with meninge fluid, but they should close on their own he says and there is nothing to worry about. She should be able to have a full, active life!!! He says there is no need for physical therapy at this point. WOW! We will go ahead with her brain scan, just to have it on file and for the neurologist to take a look at as well, but both feel she will be fine and is completely healthy.And I second that as her mother! She is an amazing little girl, who we feel so blessed to parent and she is such a gift. I cannot even believe how healthy she is. So far, she has no allergies, she's still picky with food and fluids though. She is also, finally jumping and hopping around the house, as that was a concern of ours. I want to wish all of you blessings from the most High as He has flooded our family with such blessings. I ask that you never stop petitioning and praying for your needs and those of your friends and family members. He hears our prayers, He cares too. This month we are on the JOY JOURNEY into PASSOVER & EASTER. A great resource to this is THEHAPPYHOMEFAIRY.

1 comment:

Jeanette said...

Sounds like you are doing wonderful!!!!!! Looking forward to picture!